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Books

 

D. Townend (2012) The Politeness of Data Protection: Exploring a Legal Instrument to Regulate Medical Research Using Genetic Information and Biobanking.

xxii + 274 pages. Maastricht: Universitaire Pers Maastricht ISBN 978 94 6159 163 0

 

D. Townend (1996) Using Intellectual Property as Security.

viii + 60 pages. London: The Intellectual Property Institute: ISBN 1 874001 36 7.

 

Edited Collections

 

D Beyleveld, D. Townend and J Wright (eds.) (2005) Research Ethics Committees, Data Protection and Medical Research in European Countries.

xii + 315 Aldershot: Ashgate Publishing Ltd.

 

D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright (eds.) (2004) The Data Protection Directive and Medical Research Across Europe.

vii + 235 pages Aldershot: Ashgate Publishing Ltd. ISBN 0-7546-2369-X

 

D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright (eds.) (2004) Implementation of the Data Protection Directive in Relation to Medical Research in Europe.

xii + 476 pages Aldershot: Ashgate Publishing Ltd. ISBN 0-7546-2369-6

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Peer-reviewed Journal Articles

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Shaw, D., de Wert, G., Dondorp, W., Townend, D., Bos, G. and van Gelder, M. (2016) “Permitting patients to pay for participation in clinical trials: the advent of the P4 trial” Medical Health Care and Philosophy. doi:10.1007/s11019-016-9741-2

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Townend, Dove, Nicol, Bovenberg, and Knoppers, "Streamlining ethical review of data intensive research: Unfounded concerns about local liability should not delay urgent reform" British Medical Journal  2016 354:i4181 doi: 10.1136/bmj.i4181 

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Shaw and Townend,"Division and discord in the Clinical Trials Regulation" Journal of Medical Ethics  22 July 2016 as 10.1136/medethics-2016-103422 

 

Townend, “EU Laws on Privacy in Genomic Databases and Biobanking” Journal of Law, Medicine & Ethics 44(2016): 128–142 DOI: 10.1177/1073110516644204

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Edward S. Dove, David Townend , Eric M. Meslin, Martin Bobrow, Katherine Littler, Dianne Nicol, Jantina de Vries, Anne Junker, Chiara Garattini, Jasper Bovenberg, Mahsa Shabani, Emmanuelle Lévesque, Bartha M. Knoppers (2016) “Ethics Review for International Data-Intensive Research” Science 25-03-2016 Vol. 351 Issue 6280 Pages 1399–1400

 

Sylvia Roozen, Gjalt-Jorn Y. Peters, Gerjo Kok, David Townend, Jan Nijhuis, and Leopold Curfs  (2016) “Worldwide Prevalence of Fetal Alcohol Spectrum Disorders: A Systematic Literature Review Including Meta-Analysis” Alcoholism: Clinical and Experimental Research Vol 40, No 1, 2016: pp 18–32

 

L. Landeweerd, D. Townend, J. Mesman, I. Van Hoyweghen (2015) “Reflections on different governance styles in regulating science: a contribution to ‘Responsible Research and Innovation’” Life Sciences, Society and Policy 11:8 (22 pages) DOI: 10.1186/s40504-015-0026-y

 

S. Roozen, G-J Peters, G. Kok, D. Townend, J. Nijhuis, G. Koek, L. Curfs (2015) “Foetaal Alcohol Spectrum Stoornis - een overzicht van de huidige situatie” Tijdschrift voor Gezondheidswetenschappen 93(6): 216–220 DOI: 10.1007/s12508-015-0088-5

 

N. J. Cooper, A. Swan, and D. Townend (2014) “A confluence of new technology and the right to water: experience and potential from South Africa's constitution and commons”. Ethics and Information Technology. 16:119–134 DOI: 10.1007/s10676-014-9340-y

 

L. Bongers and D. Townend (2014) “The Implementation of the Directive on the Application of Patients’ Rights in Cross-border Healthcare in the Netherlands”. European Journal of Health Law 21: 65–78 DOI: 10.1163/15718093-12341308

 

P. Schröder-Bäck, K. Michelsen, L. Bongers, H. Brand, K. Förster, and D. Townend (2013) „Rechtliche und ethische Aspekte grenzüberschreitender Gesundheitsversorgung innerhalb der Europäischen Union“. Ethik in der Medizin 26:301–315 DOI: 10.1007/s00481-013-0282-4

 

G. Stapleton, P. Schröder-Bäck, H. Brand, and D. Townend (2013) “Health inequalities and regional specific scarcity in primary care physicians – ethical issues and criteria”. International Journal of Public Health 59:449–455 DOI:10.1007/s00038-013-0497-7

 

G. Stapleton, P. Schröder-Bäck, and D.Townend (2013) “Equity in Public Health: An Epigenetic Perspective” Public Health Genomics. 16: 135–144 DOI:10.1159/000350703

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D. Townend and K. Ruyter (2011) “Overriding the Impasse of Consent in Biobank Research Through ‘Active Citizenship’: Consent Management Portals and Licence Structures for Benefit Sharing.” Lex Medicinae 16: 5–23.

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D. Townend (2010) “Privacy, health insurance and medical research: tensions raised by European data protection law” New Genetics and Society 29(4): 477–493.

 

M. J. Taylor and D. Townend (2010) “Issues in Protecting Privacy in Medical Research Using Genetic information and Biobanking: The PRIVILEGED Project” Medical Law International 10(4): 253–268.

 

K. Ruyter, K. Lõuk, M. Jorqui, V. Kvalheim, A. Cekanuskaite, and D. Townend (2010) “From Research Exemption to Research Norm: Recognising an Alternative to Consent for Large Scale Biobank Research” Medical Law International 10(4): 287–313.

 

F. Sobczak, D. Townend, and G. Van Maanen (2009) “Johnston v. NEI International Combustion Ltd [2007] UKHL 39 (‘Plural Plaques’)” European Review of Private Law 17(2): 177–247.

 

G. van Maanen, D. Townend and A. Teffera (2008) “The Dutch ‘Cellar Hatch’ Judgment as a Landmark case for Tort Law in Europe: A brief comparison with English, French and German law with a law and economics flavour” European Review of Private Law 16(5): 871–889.

 

D. Townend and A-M. Duguet (2008) “Issues in Networking and Research Funding for the European Association of Health Law” European Journal of Health Law 15(3): 307–317.

 

D. Townend (2005) “The Legitimacy of the Law in Modern Biotechnology: an introduction” pp. 99–105 in R Ter Meulen, L-M Houdebine and L Landeweerd (eds.) “Problemi di Bioetica” special edition of Global Bioethics Journal of the International Institute of the Study of Man, University of Firenze, Italy.

 

D. Townend (2005) “Handling the Instruments that Regulate Biotechnology” pp. 107–112 in R Ter Meulen, L-M Houdebine and L Landeweerd (eds.) “Problemi di Bioetica” special edition of Global Bioethics Journal of the International Institute of the Study of Man, University of Firenze, Italy.

 

D Beyleveld and D. Townend (2004) “When is Personal Data Rendered Anonymous? Interpreting Recital 26 of Directive 95/46/EC”, Medical Law International 6(2): 73–86.

 

D Beyleveld, R Kirkham and D. Townend (2002) “How Not to Implement the Human Rights Act 1998: R. v. Lambert in the House of Lords”, Legal Studies 22(2): 185–207

 

D. Townend (1997) “Intellectual Property as Security Interests: Technical Difficulties In The Present law”, Intellectual Property Quarterly 1997(2): 168–195.

 

D. Townend (1995) “Continuing problems in distinguishing the lease from the licence: Esso Petroleum Co. Ltd v. Fumegrange Ltd and others and Monmouth Borough Council v. Marlog”, The Law Teacher 29: 352–364.

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Chapters in Collections

 

D. Sprumont and D. Townend (in press) "Medico-legal Aspects of Organizing a Sport Event" pp. xx–xx in D. McDonagh (ed.) The FIMS Event Physician Manual. Fédération Internationale de Médecine du Sport: Lippincott Williams Wilkins

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D. Townend “Privacy, Politeness and the boundary between theory and practice in ethical rationalism” pp. 171–189 in Capps, P. and Pattinson, S. Ethical Rationalism and the Law Hart Publishing: Oxford. 2017

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D. Shaw and D. Townend  (2016) "Contradictions in the Clinical Trials Regulation" pp. 75–83 in Dirk Lanzerath (ed.)  Forschungsethik und Klinische Forschung: Zur Debatte um die EU-Verordnung zu klinischen Studien Münster: Lit Verlag

 

D. Townend (2014) “Patents Originating in Human Tissue and Data: questions on benefit creating and benefit sharing, on morality and property” pp. 87–99 in I. Miguel Beriain and C. M. Romeo Casabona (eds) Synthetic Biology and Human Health Dordrecht: Springer 

 

D. Townend (2013) “Incidental Findings, Data Protection, Privacy, and Politeness” pp. 27–42 in D. Lanzerath, M. Rietschel, B. Heinrichs, and C. Schmäl (eds) Incidental Findings: Scientific, Legal and Ethical Issues Köln: Deutscher Ärzte-Verlag

 

D. Townend (2011) "Safeguarding Rights in Decision-Making for those with Diminishing Competence: Ethics Committees and Procedural Justice" in Nys, H. and Goffin, T.  (eds) EBook of Proceedings of the Third European Conference on Health Law Leuven: European Association of Health Law ISBN: 978-904-861-219-2. (6,788 words).

 

D. Townend, M J Taylor, J Wright, and D Wickins-Drazilova (2009) "Privacy Interests in Biobanking: A Preliminary View on a European Perspective" pp. 137–159 in J. Kaye and M. Stranger (eds.) Principles and Practice in Biobank Governance Ashgate: Farnham ISBN 978-0-7546-7825-0.

 

D Milius and D Townend (2008) ”Thoughts on the Scope and Operation of Morality Clauses in Patent Law” pp. 76–96 in Patentnemnd uten portefølje? En analyse av etiske utfordringer ved patentering. Publikasjon nr. 7 2008, Forskningsetiske Komiteer, Oslo ISBN 978-82-7682-053-9. 

 

D. Townend (2005) “The Legitimacy of Law in Modern Biotechnology: an introduction” pp. 173–179 in R Ter Meulen, L-M Houdebine and L Landeweerd (eds.) BioTechnology-Ethics: An Introduction Angelo Pontecorboli Editore, Firenze, Italy ISBN 88-88461-49-3 (Republished in peer-reviewed journal above)

 

D. Townend (2005) “Handling the Instruments that Regulate Biotechnology” pp. 181–186 in R Ter Meulen, L-M Houdebine and L Landeweerd (eds.) BioTechnology-Ethics: An Introduction Angelo Pontecorboli Editore, Firenze, Italy ISBN 88-88461-49-3 (Republished in peer-reviewed journal above)

 

D. Townend (2004) “Suspending Data Protection Rights in the Public Interest” pp. 89–101 in D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright (eds.) The Data Protection Directive and Medical Research Across Europe. Aldershot: Ashgate Publishing Ltd. ISBN 0-7546-2369-X

 

D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright  (2004) “Introduction” pp. 1–2 in D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright (eds.) The Data Protection Directive and Medical Research Across Europe Aldershot: Ashgate Publishing Ltd. ISBN 0-7546-2369-X

 

D Beyleveld and D. Townend (2004) “EU, Norway and NAS Law Report Framework” pp. 115–123 in D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright (eds.) The Data Protection Directive and Medical Research Across Europe Aldershot: Ashgate Publishing Ltd. ISBN 0-7546-2369-X

 

D Beyleveld, D. Townend, A Grubb, R Morgan, and J Wright  (2004) “The Implementation of Directive 95/46/EC in UK Law” pp. 403–428 in D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright (eds.) Implementation of the Data Protection Directive in relation to Medical Research in Europe Aldershot: Ashgate Publishing Ltd. ISBN 0-7546-2369-6

 

D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright  (2004) “Introduction” pp. 1–2 in D Beyleveld, D. Townend, S Rouillé-Mirza and J Wright (eds.) Implementation of the Data Protection Directive in relation to Medical Research in Europe. Aldershot: Ashgate Publishing Ltd. ISBN 0-7546-2369-6

 

D Beyleveld and D. Townend (2004) “The EC Directive On Data Protection (95/46/EC) and Medical Research” pp. 251–263 in R Maheswaran and M Craglia (eds.) GIS in Public Health. Boca Raton: CRC Press: ISBN 0-415-3065508

 

D. Townend (2003) “Who Owns Genetic Information?” in J Sandor (ed.), Law in the Genetic Era, pp. 125–144. Budapest and New York: Central European University Press: ISBN 963 9241 75 X (CPS Books ISSN 1587 6942)

 

D. Townend (2002) “Using Intellectual Property as Security in the UK: current practice, difficulties and issues” pp. 417–453 in H Knopf (ed.) Security Interests in Intellectual Property. Toronto: Carswell: ISBN 0 459 27369 8.

 

D. Townend (2000) “Can the Law Prescribe a Framework for Social Science Research?” pp. 88–96 in D Burton (ed.), Research Training for Social Scientists: A Handbook For Postgraduate Researchers. London: Sage Publications: ISBN 0 7619 6350 2.

 

D. Townend (1996) “Law, Ethics, and Social Science Research” pp. 25–52 in I Crow (ed.), The Principled Researcher. Sheffield: University of Sheffield.

 

D. Townend (1995) “Termination of Contracts the Residential Housing Market” pp. 183–206 in J Birds, J Bradgate and C Villiers (eds.) Termination of Contracts. London:

Wiley Chancery: ISBN 0471 94302 9.

 

D. Townend (1992) “Decision-making in the Child's Best Interests: a discussion of some preliminary research findings” pp. 21–40 in M Parry (ed.) The Children Act 1989: Conflict and Compromise. Hull: Studies in Law: Hull University Law School: ISBN 0 85958 33 9

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Refereed Conference Contributions

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D. Townend, M. J. Taylor, J. Wright, D. Wickens-Drazilova (2009) PRIVILEGED – Protecting Privacy in Law Governing Genetic Research. European Association of Health Law,

2nd Conference, Edinburgh

 

D Beyleveld, D. Townend, R Lei, S. Rouille-Mirza, and R. Wong (2002) PRIVIREAL - Privacy in Research and Law. Poster:  World Congress on Bioethics, Brazil

 

Reports

 

T. Schulte in den Bäumen, E. Syurina, and D. Townend (in press) Data Protection in Biobanking Report for the JRC-Institute for Prospective Technology Studies (193 pages).

 

D. Townend, T. Schulte in den Bäumen, P. Schröder-Bäck, M. Posada, and A. Brand (2012) The Legal and Ethical Framework of EU Rare Disease Policies EPIRARE Project Report, WP4

 

L. Landeweerd, D. Townend, J. Mesman, and I Van Hoyweghen (2012) Best Possible Models of Governance of Science and Technology EPOCH Project Report, WP2.

 

L. Landeweerd, R. Vos, and D. Townend (2011) Two Technologies: Value Dilemmas Value Isobars Project Report 2 of 2, WP5.

 

D. Townend and C. Pitz (2011) Legal Report D6.2 EthicsWeb Project Report, WP6.

 

D. Townend and C. Pitz (2010) Biopreparedness in UK and The Netherlands Report for Bilbao University.

 

L. Landeweerd and D. Townend (2010) Introductory Overview of Ethical Issues and Values Relating to Two Technologies Value Isobars Project Report 1 of 2 WP5.

 

M. J. Taylor and D. Townend, et al. (2010) PRIVILEGED Final Report. Report to the European Commission on the Work of the PRIVILEGED Project, including the Project Findings. http://www.privileged.group.shef.ac.uk/projstages/recommendations/ (last viewed 1st September 2012) 67 pages.

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D Lanzerath, D. Townend, G van Steendham, et al. (2004) FEASIBILITY STUDY for an Advanced Systematic Documentation, Information and Communication Tool in the Field of Ethical Issues in Science, Research and Technology. Report to European Commission (DG Research, Science and Society), Sixth Framework funded project, acronym FASTER. 58 pages (26,800 words) (+ 5 annexes authored by the various participant groups, of which Annex 3a is no. 24 below authored by SIBLE)

 

D. Townend, S Booth, S Sethe, and Y Uphadhyay (2004) Legal Issues in Creating an Advanced Systematic Documentation, Information and Communication Tool in the Field of Ethical Issues in Science, Research and Technology (Annex 3a of no 23 above) 64 pages (20,500 words).

 

S Booth, R Jenkins, D Moxon, N Semmens, C Spencer, M Taylor and D. Townend (2004) What are Personal Data? Final Report to the Information Commissioner, UK. Wilmslow: Office of the Information Commission 142 pages (52,600 words).

 

D. Townend (2003) Law: A Short Introduction. Geneva: UNEP-GEP. 4,500 words.

 

D. Townend (1999) “Legal Issues” pp. 1–3 in Security Interests in Intellectual Property. London: The Intellectual Property Institute Seminar Papers: ISBN 1 874001 53 7

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